28-year-old Emily Felix has a rare neurological degenerative disease called Friedreich’s Ataxia. She is one of around 200 people in Ireland living with the disease. Patients with Friedreich’s Ataxia will travel to Leinster House this afternoon to call on the Government to make the first treatment for the disease available to them. They say a drug called Skyclarys would slow the progression of the condition. However, a report from the National Centre for Pharmaeconomics (NCPE) in December recomme
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